[NSW] Free 5-Day Post-Diagnostic Retreat for Early Dementia Patients and Support Partners @ Videri Australia

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Learn about Dementia
If you or someone close to you have Dementia. You may be interested in this program.

I dont have any afiliation with these programs.
Just thought it would be valuable to someone on ozbargain.
I have not been on any of these retreats but have heard that they are good.

Five day program funded by the government
Food and accommodation paid by the government

https://www.facebook.com/share/1Bw7UoipYy/

https://www.hammond.com.au/care/home-care/staying-at-home

https://forwardwithdementia.au/news/new-five-day-post-diagno…

No code needed. Just click and join.

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Comments

Search through all the comments in this post.
  • +10

    Some people might forget to show up 😂

    • +26

      Not sure whether to upvote or downvote.

      • -1

        the carer will have to remind them to go

      • +1

        Nah, the emoji betrays the motivation of the comment, f**k that guy.

        I've seen it in younger people - early dementia is a long and excruciating experience for the patient and their family/those around.

        Good work OP.

  • +16

    Great shout for those with close family or friends that are affected.

    • +2

      Do some basic research before making assumptions/blanket statements.

        • +7

          Opinions are not facts.

    • +1

      If you find out it is a scam, please tell me so i can take it down

      • -3

        Where did I say it is a scam ???

    • +1

      How about your final impression after you thought about it for awhile?

      Do you believe this is a ponzi scheme?

      • -8

        How about your final impression after you thought about it for awhile?

        I looked briefly on their site and couldn't work out exactly what they do…
        It looks like it's one of those places you go to and hear speeches trying to con you into buying their other services.

        I never said it was a scam, just that is the impression I get…

        • +6

          For all the useless drivel you post, this has got to take the cake. Admits to reading next to nothing then throwing out wild accusations against a free community health service. Not even quick enough to get the hallowed first post you so crave. You need something better to do with the overwhelming amount of free time you have.

          • -3

            @Hinee:

            throwing out wild accusations

            What is the wild accusation?

          • @Hinee: It's only a waste of time if she's using the comment section to engage with ideas and failing because of a genuine inability to communicate.

            If their sole purpose of being on here is to make personal comment number go up, big number is legacy, then she's doing exactly what it says on the tin.

            JV: "There's no substitute for quantity"

  • -5

    sent to my father,
    he forgot who i was

    • Is that you, Luke?

      • -2

        from a certain point of view

    • -2

      Is that you, Wally?

    • That is a really shit attitude, like, really, really shit. Reading this makes me hope bad things come your way.

    • +1

      What an awful take. Did you think you were being clever or funny? You have been neither.

  • I can imagine living with dementia is like being in the movie Memento

    • +1

      How do you figure? Do you know anybody with dementia?

      • In the movie the main character forgot everything so people around to him mistreated him as he'd forget.

    • +4

      It's not, because you don't have the presence of mind to write things on your arm. And if you did, you wouldn't know what they meant, or even comprehend that they are on your arm. And when someone is trying to wash the incomprehensible squiggles off your arm, you punch them because why is this stranger holding onto your arm.

  • Great deal!

  • +8

    Losing your mind has to be one of the scariest things. Impressive program by the govt.

  • +4

    Some people just can't help writing stupid comments even on a serious post like this can they?

  • -2

    Great deal!

  • And just like that I remember nothing.

  • +4

    Shit like this makes me proud to be Australian.

  • +25

    My father died of frontotemporal dementia (semantic variant) last year. I can now point to early symptoms 20 years ago for which we had no explanation, but he was only diagnosed in 2020. These courses would have helped our family, but by that time he was incapable of understanding what dementia was, so it wouldn't have helped him.

    Here's the best advice I received: it's a downhill journey all the way and there's nothing good about it, but there will be moments that make you laugh. Hold onto those moments. For example, at a point where my dad had lost his ability to speak coherently and even his short-term memory, he saw a female patient across the room scratching her leg. She hitched up her dress to scratch more easily, and my dad wolf-whistled at her. He wasn't aware he'd done it and he had no context afterwards, but it was funny.

    It's a long and difficult journey, but after their death your memories of who they were before the dementia will come back into focus, and that's who you'll celebrate and remember. Make sure you also look after the relatives who are carers or the primary contact after they enter full-time care, because that's a heavy thing.

    • +8

      i agree with the above, my dad also passed away from dementia in 2005 and for me, I wish i had more information about this as I thought my dad was just going crazy.
      Its sad to see someone go through this process as they are loosing control of their mind and they can't do anything about it. It was even hard that we had to place him in a nursing home until he passed away

    • +11

      Thank you for making the time to share this. A member of my immediate family is in hospital right now (with a clinical diagnosis of vascular dementia), with the next step being to a care home. We are certainly seeing some correlation of dementia-related behaviours to things we started seeing in the last 10 years, even though we only really spotted the cognitive decline in the last 5.

      I am glad you have been able to shift your memories to the good times you shared. This is a cruel disease that causes a lot of heartache long before you even know its the root cause.

      To anybody reading this: If you know somebody with a family member suffering through dementia, reach out to them and ask how they are going. The emotional burden they carry is immense.

      • +3

        Sending strength to you and yours. If it helps, my way of judging a good care home became the patients' hair. If everyone has greasy hair, they're not being looked after well. If they're all shampooed and fresh, the staff do their work.

    • Yeah man. Feel for you and anyone else affected by this horrific illness.

      I swear, if I get diagnosed, I have written a simple sub routine I will execute.

      Jump (off cliff).

      There are only guaranteed good times today. Tomorrow or later today, unsure. Enjoy while you can.

      • +2

        I hear you. Mine became "walk off into the desert". Although if you're diagnosed, you're probably not going to do what you intended, because you don't know or care or remember what you wanted.

        • +1

          Yeah true and that is the most devastating part of this illness.

          • @Naigrabzo: Not knowing or caring would be a blessing. My fear would be to be conscious but unable to do anything about it.

      • +1

        yeah i thought about this too if i ever happened to me, I know its a burden to the family so I would (if i remember) to go to snowy place in canada, do a hike as far I could from civilization and just sleep to death

        • I'm pretty sure that would cause more more stress and grief than your family than caring for you.

          …. depending on who you are I guess.

  • +1

    why only NSW? Does NSW have the biggest case of Dementia?

    • +1

      Probably because of funding.

      • -1

        CFMEU since they are immune to IBAC investigations.

        They're immune to IBAC investigations in exactly the same way you're immune to OzBargain mod investigations

        I'll admit they're a protected species if you admit you're one

        • -2

          Nice trolling.

          How long have you been practicing?

          • +1

            @jv:

            Nice trolling

            Praise from Caesar!

    • There are other government funded programs provided nationally.
      Respite Dementia Care

  • +3

    Can't wait for the first ozbargainer to put their home on Airbnb for 5 days so they can make some money out of this free service

  • +6

    When I was solo caring for a family member who had just been diagnosed and was waiting for a care facility place, the short-stay respite programs were critical to allow me to rest and process what was happening. It’s hard to convey how brutal it is to see someone important to you suffering this condition. It’s sad we don’t have a better system to cover it.

    Anyone who suspects a loved one may be declining cognitively, my advice is to gently work with them to get tested and make plans together if they’re receptive to it. However, like in my case, it was denial and unpreparedness. Who can blame them though?

    • my advice is to gently work with them to get tested

      Yes… ASAP. There are many drugs that considerably slow down the progress of Dementia .

    • +1

      and make plans together

      Especially Power of Attorney…
      Otherwise you might find yourself in a position where the government are making decisions for them instead of their family…

    • +1

      We’re putting our grandpa into a specialised dementia ward at a retirement home. It’s (profanity) expensive AF, but it’s just not something that my grandma (or any other family members) can take on. It’s a legitimate 24/7 carers role

      • +2

        It really is and the toll is not only financial but mental, emotional and comes at a huge opportunity cost too. I applaud anyone who steps in to be a carer but also 100% support them if they can’t or don’t want to do it any more. It stressed me out immensely and the emotional impact of seeing the person so affected and just slowly losing the life they’d built was way too much to face every day. Moving them to the care facility was the saddest moment I’d faced yet was so necessary. So anyone reading this, don’t feel ashamed if you can’t keep them at home. It’s almost impossible. Best wishes bro / sis to your grandpa and family.

        • +2

          It’s worse for my grandma. Spent everyday for the last 40+ years together. It was hard for her to realise that she couldn’t look after my grandpa, but he is so far gone that it’s impossible.

        • Yeah, Ive been waiting for the so called AI robots take on this role. It's so tiring hearing the profanity, asking the same questions all over again and getting angry etc 24/7. I reckon a robot could answer questions all day etc and take all the abuse….

  • +1

    On a relevant note:

    Shoutout to the family in ED who neglected to warn us that their sweet grandpapa is prone to violent tendencies secondary to dementia. A nurse got punched in the (profanity) face. They just stood to the side, watched the patient wake up, punch the nearest stranger, and they didn't even apologise.

    • WTF? Looks like I will wear my armour when I walk into ED next time.

  • Does anyone have experience with Videri or this retreat? I can't find a lot of reviews.

    I don't want to forward the info if it's just a sales pitch. I tend to agree with JV's comment above; their website reads like they're trying to sell an expensive product by giving free samples.

    • I don't see a single hint of anything for sale - they're providing government-funded assistance.

      How did we become so cynical?

      • They sell respite care. I just don't want to suggest this to my loved ones without understanding if they're going to feel pressured to buy something

        "Our homes are nestled within local communities, each supporting just 6 to 10 residents and providing 24/7 permanent and flexible respite care, meaningful connection and daily opportunities to thrive – all shaped by each person’s unique life story."

        • ah I see where you and JV are coming from

          • +1

            @SlickMick: If anyone's interested, I contacted a few of the commenters from one of Videri's Facebook posts to ask them if they went on a retreat and how they felt about it. Three said they absolutely loved it and found it very valuable. One of these three FB called me and spoke at length about her experience. She said there was no pressure to buy anything but she was aware Videri provided extremely high end respite care. A different person said they were ghosted by Videri and never got to attend.

            • @Lil0leMe: This got me looking into end-of-life accommodation.

              This seems great but outside my budget. I'd hate the idea of running out of money and getting kicked out when you're old and decrepit.

              Traditional aged care, if I understand it correctly, requires "loaning" them 100s of $1000s, with the principal going to your estate (what a strange system!!??), plus potentially over $100Kpa (depending on how much care you need??) for a few years until you hit the lifetime thresholds, then a more reasonable ~$30Kpa.

              My grandmother is the only person I've known to use aged care, so maybe I'm wasting my time.

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