Anyone here got any experience with this and tests for diagnosis?
HHT (Hereditary Hemorrhagic Telangiectasia) Anyone Diagnosed?
PLANT on 24/02/2019 - 16:41
Last edited 24/02/2019 - 17:23 by 1 other user
Last edited 24/02/2019 - 17:23 by 1 other user
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I have experience from a transfusion point of view. It’s a very serious, lifelong condition that often causes life threatening bleeding. Should get a referral for see a haematologist for tests, diagnosis and ongoing management.
Even if the tests come back negative, should go see a haematologist anyway if you regularly have unexplained bleeding episodes.
https://en.m.wikipedia.org/wiki/Hereditary_hemorrhagic_telan…